Monday, June 19, 2017

Auction for Grandma/Update on my Niece

Those of you that have been following the facebook page know that my family has a lot of medical issues.  (That's an understatement.) You would also know that my paternal grandma has been diagnosed with brain cancer.  She/her children opted to go for chemo knowing that it will only extend her life maybe a year, if she doesn't succumb to side effects first, from what I've been told.  She's really not doing good.  She had been moved to a nursing home/assisted living facility that will help get her the care at all hours that she needs and help with her medications and making sure she eats, but it is expensive.

I've been trying to set up an auction to help raise money to cover at least some of the costs (her medicare is refusing to cover pretty much anything at this point and the facility costs are completely out of pocket for my aunts and uncles).  I haven't been able to set it up yet, because life, but it looks like the items will all be from my shop or items that were gifted to me from another crafter leaving her business.  (I didn't reach out to anyone individually because I didn't want to feel like I was guilt tripping anyone into donating their work.)

However, I am still working on setting it up.

I also currently have a coupon code up on Etsy until the end of June. If you use IG2017 you will receive 50% off of your order.  (You'll also be emailed an additional 20% off coupon code because it's still set up that way.)  You can find the link somewhere next to this post or by clicking here.

I will update with when the auction is set up on facebook.  I'm still trying to figure out how to hold one on Instagram.  I know I don't get enough traffic here (by my own doing as I don't post often).  If I were to hold it here on the blog (to avoid the long legal disclaimer "this is in no way affiliated with Facebook" blah blah blah), how would I do it?  Have each piece given their own post?  What are your thoughts?  Any input is appreciated!

Thank you all again for all of your support still.  I know I've put you all through a lot with everything I've been going through.


My oldest niece is also still having some major issues with her epilepsy and they believe she may have Dravet's Syndrome, which "is a rare genetic epileptic encephalopathy (dysfunction of the brain). It begins in the first year of life in an otherwise healthy infant. Prior to 1989, this syndrome was known as epilepsy with polymorphic seizures, polymorphic epilepsy in infancy (PMEI) or severe myoclonic epilepsy in infancy (SMEI)."  She will be going to a better educated and specialized children's hospital out of state next month to get the help she needs.  Currently her specialist at Riley, while not specialized with Dravet's (no one in Indiana is, it seems), agrees that she should try "Charlotte's Web"* in 6-8 weeks after her and her parents' blood work comes back for some more in depth testing.  
She had multiple absence seizures in the office for the appointment that the doctor witnessed today and was concerned about.  My sister says it felt like someone was finally listening for the first time today.  She's getting a referral to a psychiatrist and behavioral specialists finally for help with school too (which my kids get for help with other mental issues).

*With it having less than .3% THC, I might be able to use it.  I am constantly "suggested" by well meaning friends to try cannabis, but I have always had a severe allergic reaction--but how do you go to the doctor for an epipen for cannabis, which is/was illegal?  Recently, however, I've discovered that it may actually be the THC that I'm allergic to, along with the paper.  Burning paper on cigarettes as well causes allergic asthma attacks.